In the beginning I needed to get my hands on anything I could to help me understand what it meant to be the parent of a “disabled child.” Books and blogs, podcasts and movies consumed me. I found plenty of inspirational stories, there was beauty in the chaos, and hope sprung up to replace fear. But I couldn’t help but be appalled at the soundtracks that seemed to accompany the stories. Every vignette seemed to be rife with haunting violin solos and horrendously sad piano music, designed to pull at the heart strings of anyone who heard it, designed to make you feel not inspired, but sorry for the subjects. My ego was appalled- who the hell wants to be felt sorry for? And the mother in me rebelled- don’t you dare think of my son as a tragedy! Hence the title- my life is not perfect, but it sure is interesting. I feel picked for something incredibly special, and that’s what I want you to feel too. xo
please don't cue the sad music 